I think Ruby got over stimulated and also didn't feel well, because she cried for 3 straight hours last night from 8 to 11. It's hard to walk a baby around when they are attached to the oxygen on the wall. I had about 3 feet that I could pivot in and nothing was making her happy. The respiratory therapist finally came in and gave her a racemic epinephrine breathing treatment. She had developed a stridor (high pitched breathing sound which indicates swelling in the back of the throat) and wanted to use the epinephrine to decrease the swelling. This seemed to help and she finally calmed down. She has done well the rest of the night and this morning. She is coughing, but she has fed and rested well, and they have lowered the amount of oxygen that she is on. The plan is to keep her here tonight and hopefully she will do well and get to come home tomorrow, but we will see. We are currently still in an ER room. The hospital is over crowded, but we hope to get a regular room later this day. It's not too bad, but sharing a bathroom with the neighboring room is a little weird. It seems like there are 20 people in there with how often I hear them in the bathroom, but they probably didn't appreciate my middle of the night bathroom usage either!
We have no idea if this is the same virus from last week or something new. This is a prime example of how prematurity continues to affect us. Premature babies are not just small newborns. They have so many risks to their health and development that we can't always predict. My hope and prayer is that one day they will not be affected by their prematurity, but there are still a lot of unknowns at this point. They have certainly done well so far even despite our frequent hospitalizations, but just because they start to gain weight and look like "normal babies" we can not let our guard down. I think the general public thinks that once you get out of the NICU and gain weight that you are just like any other baby, but that is not the case. Speaking of weight gain....at the pediatrician this week Millie weighed 9 lbs 12 oz and Ruby weighed 9 lbs 10 oz!
Ruby resting!
I hope your sweet girl continues to feel better so you can get home soon. Leland and Alston played together yesterday, and when Amy Liz saw John, she commented that he and Emmett would likely get along famously (as John belly-flopped onto the baby playmat). As if you need anything added to your plate, I want you to somehow meet a friend (if you haven't already... the two of you share all kinds of friends) whose twins are in P1 at Ensworth this year. They are bright, spunky, and thriving, and they were 27 weekers (I think) who spent significant time in the NICU. Now they are six and are reading, playing soccer, and are just all around fantastic kids.
ReplyDeleteLove to all,
MC
prayers and strength to you!!! You absolutely amaze me! Hang in there and know you have so many cheering and praying for you.....also, I don't know if you had lots of visitors when you first got home...but I think everyone would understand if, when you get home with her this time, you tell everyone just to stay away for a bit...or if leaving meals...to drop and run...not ask to see the babies...you are right...the risks are just not worth it...and no one can blame you for being a protective mom!!! you do what you need to, to keep your precious gifts safe and healthy!!!
ReplyDeletemuch love
susannah macmillan